I walked along that street, oblivious to the sweat on my forehead and upper lip, loving the sunshine and the periodic breeze. But what I loved more was watching my son walk with purpose towards every house. Towards every mailbox. Towards wherever he could place one of those purple and white envelopes. He insisted on... Continue Reading →
They let me kiss her on the forehead while they held her… The sweet little baby girl. Her enamored parents. Being only a month old, hers reminded me of my son’s sweet face when he seemed so incredibly tiny and fragile. Breakable, yet little did I know how resilient he would be. And little did... Continue Reading →
*I wrote this last Wednesday night... Before today, through all of this, I’d really only cried- like balled my eyes out, snot from my nose- one other time. I’d had too little to eat and a couple drinks celebrating my birthday with 2 of my girlfriends… the stress melting as I sat back and... Continue Reading →
We were with three other couples, and randomly enough, one of the couples knows someone with epilepsy, another couple (us) has epilepsy, and a third couple's child is currently testing for newly emerging epilepsy… 3 out of the 4 couples somehow touched by Epilepsy. And that's not why we were together... the conversation unexpectedly ended up there.... Continue Reading →
Here's the video we played at the rollout of Orange County's Care+Cure program at the gala. UCI did a wonderful job and for those of you that don't "know me" very well, this might help! :) SO proud and privileged to be able to represent the Epilepsy community in spreading awareness. I am surrounded by so... Continue Reading →
She made a great point- the one people with inconspicuous Epilepsy often do. It was a picture I posted on my Instagram of me in San Francisco outside the City of Lights bookstore (amazing, by the way, highly recommend), all dressed up. The trip with my husband was two-fold; I went to UCSF for more Epilepsy testing and then the rest of the weekend saved for a fun-filled early birthday. As you can see, I’m smiling, relaxed and happy… I was, truly...
I don’t think you can ever adequately describe an aura to someone who’s never had a seizure… It comes out of nowhere- soft, floaty, like my body’s lifting, as though weightless. And yet, I can feel just enough to know that I’m tingling...