Magna Tiles & Pediatric Epilepsy: My Message at Care+Cure 2018

You know I was on the phone with my friend Emily two days ago telling her that I hated my speech. I’d written one and chucked that. I wrote the second one and was completely unhappy… And she said that’s because last year you told your own story and it came straight from the heart…... Continue Reading →

Epilepsy Life: Little Fighters Born Into Big Battles- And How They WIN :)

I walked along that street, oblivious to the sweat on my forehead and upper lip, loving the sunshine and the periodic breeze. But what I loved more was watching my son walk with purpose towards every house. Towards every mailbox. Towards wherever he could place one of those purple and white envelopes. He insisted on... Continue Reading →

Not Knowing: Epilepsy, Cancer, Whatever…

  *I wrote this last Wednesday night...  Before today, through all of this, I’d really only cried- like balled my eyes out, snot from my nose- one other time. I’d had too little to eat and a couple drinks celebrating my birthday with 2 of my girlfriends… the stress melting as I sat back and... Continue Reading →

Flutter, In Out: Epilepsy

I sat there watching it flutter ever so slightly… down, up, down, up… Brief inhale, long exhale. Quick to capture the air, slow to let it go. So soft and sweet I almost held my breath for fear the motion of his chest would stop. All would be paralyzed. I’d panic. Remember to beat, my heart.

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