Flutter, In Out: Epilepsy

I sat there watching it flutter ever so slightly… down, up, down, up… Brief inhale, long exhale. Quick to capture the air, slow to let it go. So soft and sweet I almost held my breath for fear the motion of his chest would stop. All would be paralyzed. I’d panic. Remember to beat, my heart.

4 Reasons I’m Thankful for Epilepsy

...there are byproducts of living with this disorder for which I'm grateful and putting them into words reminds me of something we've done on several Thanksgivings at my parents' house. We picked tree leaves and kept them in a basket by the door- at some point before dinner, each person would take one leaf and write something for which he/she was thankful, then we'd go around the dinner table and share our leaf...

Tragedy & Perspective: We RiSE

So this weekend, in fact today, Friday, October 6, my husband and I were supposed to attend The RiSE festival outside of Las Vegas… Something I had been looking forward to for months and months since I purchased our tickets. It's supposed to be a time to come together with music, but most importantly, a message...

Sunday Funday… Wins

but I always appreciate my husband’s feedback and observations of my behavior as we adjust meds and levels. I can easily tell when one increases hair loss on the head and growth on the chin (ugh lol), but he notices the behavior...

Counting Pieces to Peace: Weekend Epilepsy

My Saturday revolved around a rectal syringe. (Great first line huh?) It felt dirty. Not necessarily dirty, but….. exceptionally sad. I’d tried so long to avoid it. Increasing the pills already, apparently, failing to work. Then CBD oil to no avail. And I knew I was just putting off the inevitable while having number 62, 63, 64… hearing... Continue Reading →

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