I sat there watching it flutter ever so slightly… down, up, down, up… Brief inhale, long exhale. Quick to capture the air, slow to let it go. So soft and sweet I almost held my breath for fear the motion of his chest would stop. All would be paralyzed. I’d panic. Remember to beat, my heart.
Counting Pieces to Peace: Weekend Epilepsy
My Saturday revolved around a rectal syringe. (Great first line huh?) It felt dirty. Not necessarily dirty, but….. exceptionally sad. I’d tried so long to avoid it. Increasing the pills already, apparently, failing to work. Then CBD oil to no avail. And I knew I was just putting off the inevitable while having number 62, 63, 64… hearing... Continue Reading →
Dear Little One: I Know Epilepsy too…
I didn't need to see it. See them. I'd already lived it, or at least my own version. Because if anything, I've learned we're all different, but not in the pain. That we share as deeply as two strangers who have never met but live in the same body, can.
Sunshine & Rain: Mommy Memories
I thought I heard the rain again. It’s pitch black and I don’t remember the forecast predicting anything other than 60s but it’s raining. The light clapping sound on my roof and the slapping off my backyard concrete, proof. So I decided to bring my trusty laptop outside and talk to you. 😊
Random Musings: My Guardian Angel & “Our” Upcoming EEG
In fact, I think I realized it the first day I felt one coming on and shuffled my legs back against the coffee table and then slid down to a seating position. We were just playing ball (well, rolling it back and forth- let’s not exaggerate our abilities) and I let the ball roll past me and sat down. He walked to me, squatted down...