Hair- begins to represent less and less of you and more and more of your “invisible illness.” That was literally my first thought as I did my hair for the first time since I hacked off 6 inches… I mean, I’ve had long hair all my life- down to the middle of my back... Continue Reading →
Capturing Cloud 9
Ridiculous, I know, but since forever, I've always wanted to jump out of a plane with a jar in one hand and the lid in the other over a pile of fluffy, brilliantly white clouds. And ultimately I'd turn the jar face down and catch a piece of that cotton candy sky, seal it tight and then I would never have to be fully back "down to earth" with it by my side...
Quality of Life: What Have I Earned?
I’m sitting on the precipice of possibility and don’t know which way to go. I’m conflicted...
A Letter to My Husband: When We Aren’t Sick Anymore
Yep, I know. I know he is. He always is. My sanity, my “life coach” on days I can’t see straight for being so depressed, my normalcy, my savior along this journey... And so this post is a letter to him. To all the unsung heroes and caretakers that bear the brunt of a disorder/disease they “acquired” by association and through……….… love.
The True Cliche
I guess I learned, we often "expect the unexpected" to happen to us or go through life just dealing with what’s thrown at us. That morning I thought, maybe it’s time my Epilepsy should expect the same.