Epilepsy Life: Little Fighters Born Into Big Battles- And How They WIN :)

I walked along that street, oblivious to the sweat on my forehead and upper lip, loving the sunshine and the periodic breeze. But what I loved more was watching my son walk with purpose towards every house. Towards every mailbox. Towards wherever he could place one of those purple and white envelopes. He insisted on... Continue Reading →

Not Knowing: Epilepsy, Cancer, Whatever…

  *I wrote this last Wednesday night...  Before today, through all of this, I’d really only cried- like balled my eyes out, snot from my nose- one other time. I’d had too little to eat and a couple drinks celebrating my birthday with 2 of my girlfriends… the stress melting as I sat back and... Continue Reading →

Our Harbor of Three vs. Cancer & Epilepsy

I needed a little liquid courage to put this on paper. (Besides it’s always much grittier, less polished and pretty, like real life.) But he said no. Nobody can know...

Jagged Lines: Experiencing an Epileptic Aura

I don’t think you can ever adequately describe an aura to someone who’s never had a seizure… It comes out of nowhere- soft, floaty, like my body’s lifting, as though weightless. And yet, I can feel just enough to know that I’m tingling...

When Life Isn’t How You Planned: Diastat

Some people think certain things shouldn't be shared or said, and this is probably one of them. We all value our privacy… But Lord knows this blog is not about privacy or painting a picture of health. It's about honesty and real-life, for some of us...

Powder: Long Nights & Clean Slates

I saw it pop open and powder fall everywhere… a small arc of white flakes. So tiny, yet so significant. I tried to scoop it into my palm so as to collect as much as I could for my mouth but it was futile. Attempting to open the bottle again proved even worse and I made my way back to my bedroom from the kitchen feeling my insides rattle...

A Letter to My Husband: When We Aren’t Sick Anymore

Yep, I know. I know he is. He always is. My sanity, my “life coach” on days I can’t see straight for being so depressed, my normalcy, my savior along this journey... And so this post is a letter to him. To all the unsung heroes and caretakers that bear the brunt of a disorder/disease they “acquired” by association and through……….… love.

Four Days…

And our phone conversation perfectly encapsulated the isolation of my pregnancy, the sheer loneliness of these past 6 months. Portions of the last 4 years really. Geez that “looks” long when you see it on paper but living it is even longer, and being forgotten while living is even more painful...

The Epilepsy Stigma & How It Makes Me A Liar

Looking back through our vacation pictures, I can't help pause at one in particular and laugh... I'm giving Beyoncé's photo-shopped Instagram pics a run for their money. I mean wow- look at that thigh gap. lol (Thank you opportune awkward leg placement in combination with husband’s perfect random hat positioning.) Nonetheless, nice work. And look at... Continue Reading →

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