They let me kiss her on the forehead while they held her… The sweet little baby girl. Her enamored parents. Being only a month old, hers reminded me of my son’s sweet face when he seemed so incredibly tiny and fragile. Breakable, yet little did I know how resilient he would be. And little did... Continue Reading →
Counting Pieces to Peace: Weekend Epilepsy
My Saturday revolved around a rectal syringe. (Great first line huh?) It felt dirty. Not necessarily dirty, but….. exceptionally sad. I’d tried so long to avoid it. Increasing the pills already, apparently, failing to work. Then CBD oil to no avail. And I knew I was just putting off the inevitable while having number 62, 63, 64… hearing... Continue Reading →
Date Night: Public Dinners & Private Battles
it was just a bunch of words flittering around me as I twitched and floated in my own space. Nobody noticed anything but I felt it all descend upon me. The black around me, overwhelming background noise and my inability to form coherent sentences. I wished it away. As always… But it's not something you can ever wish away. And that's what made me hate it most in that moment.
The Contradiction: Invisible Epilepsy
She made a great point- the one people with inconspicuous Epilepsy often do. It was a picture I posted on my Instagram of me in San Francisco outside the City of Lights bookstore (amazing, by the way, highly recommend), all dressed up. The trip with my husband was two-fold; I went to UCSF for more Epilepsy testing and then the rest of the weekend saved for a fun-filled early birthday. As you can see, I’m smiling, relaxed and happy… I was, truly...
Jagged Lines: Experiencing an Epileptic Aura
I don’t think you can ever adequately describe an aura to someone who’s never had a seizure… It comes out of nowhere- soft, floaty, like my body’s lifting, as though weightless. And yet, I can feel just enough to know that I’m tingling...