Life, In This Together, Epilepsy & Being Human

They let me kiss her on the forehead while they held her… The sweet little baby girl. Her enamored parents. Being only a month old, hers reminded me of my son’s sweet face when he seemed so incredibly tiny and fragile. Breakable, yet little did I know how resilient he would be. And little did... Continue Reading →

Counting Pieces to Peace: Weekend Epilepsy

My Saturday revolved around a rectal syringe. (Great first line huh?) It felt dirty. Not necessarily dirty, but….. exceptionally sad. I’d tried so long to avoid it. Increasing the pills already, apparently, failing to work. Then CBD oil to no avail. And I knew I was just putting off the inevitable while having number 62, 63, 64… hearing... Continue Reading →

Date Night: Public Dinners & Private Battles

it was just a bunch of words flittering around me as I twitched and floated in my own space. Nobody noticed anything but I felt it all descend upon me. The black around me, overwhelming background noise and my inability to form coherent sentences. I wished it away. As always… But it's not something you can ever wish away. And that's what made me hate it most in that moment.

The Contradiction: Invisible Epilepsy

She made a great point- the one people with inconspicuous Epilepsy often do. It was a picture I posted on my Instagram of me in San Francisco outside the City of Lights bookstore (amazing, by the way, highly recommend), all dressed up. The trip with my husband was two-fold; I went to UCSF for more Epilepsy testing and then the rest of the weekend saved for a fun-filled early birthday. As you can see, I’m smiling, relaxed and happy… I was, truly...

Jagged Lines: Experiencing an Epileptic Aura

I don’t think you can ever adequately describe an aura to someone who’s never had a seizure… It comes out of nowhere- soft, floaty, like my body’s lifting, as though weightless. And yet, I can feel just enough to know that I’m tingling...

My Fond Kinship w/ “The Prisoner”- Epilepsy & Wine

I love this wine, the taste and the symbolism. Every time I open the bottle, I stare at that label and think- how ironic. “The Prisoner.” He appears to be in some sort of jacket, bound in chains and shackles that tighten with the twist of the knob around his ankles. So specific, I wonder what the winemaker thought, experienced, endured while harvesting the grapes and waiting to see what they’d yield...

The Sustenance of Hope: Epilepsy Awareness Month

“You cannot live on an anecdote, but you can live on hope. We can always have hope. We must always have hope.” -Dr. Jack Lin These are the words of my doctor as we discussed my new medication. He’d just finished explaining the success he’s found with other patients using this very new and relatively... Continue Reading →

When Life Isn’t How You Planned: Diastat

Some people think certain things shouldn't be shared or said, and this is probably one of them. We all value our privacy… But Lord knows this blog is not about privacy or painting a picture of health. It's about honesty and real-life, for some of us...

The Little Man & I: Epilepsy and Pregnancy

They say a baby will shake up your life and my little man did just that- in more ways than one :) I always knew the possibility that even before he got here, there would be tests as to how strong the two of us would be together. Well, we made it, but not without a few bumps and bruises and nights of making deals with God to keep my baby safe no matter what my body threw at me.

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