“Why Not Us?”: The Epilepsy Presence

We were with three other couples, and randomly enough, one of the couples knows someone with epilepsy, another couple (us) has epilepsy, and a third couple's child is currently testing for newly emerging epilepsy… 3 out of the 4 couples somehow touched by Epilepsy. And that's not why we were together... the conversation unexpectedly ended up there.... Continue Reading →

Epilepsy Blog Relay: “Riser”

Maybe you’re new to Epilepsy and in that case, one of my usual posts depicting daily life or the continual struggles/side effects would be most helpful. However, today is short and sweet for once. I welcome the newbies but I’m talking to the “old timers,” whether Epileptic yourself or a caregiver...

When Dreams Bridge Into Reality: OC Care+Cure

The goal is to establish care for all seeking answers for his/her Epilepsy and begin to provide more hope for the families fighting this disease together. With less than 15 epilepsy specific neurosurgeons nation-wide, with only 2 using specific cutting-edge robotic devices on the West coast, we are starting here...

Epilepsy Options? Surgery, Technology, Oh My!

Twenty years ago, I didn't take the chance to be my own advocate, but now I have the chance to understand what's out there... and not be afraid of it...

Reality vs. Creativity: Epilepsy Awareness

(This post is part of the Epilepsy Blog Relay™ which runs from November 1 through November 30.) You know what a new med is like? It's like hope, optimism, your savior, terror, your enemy, the one thing that can make you worse. This last time, while I was in the hospital, we ditched one med... Continue Reading →

The Sustenance of Hope: Epilepsy Awareness Month

“You cannot live on an anecdote, but you can live on hope. We can always have hope. We must always have hope.” -Dr. Jack Lin These are the words of my doctor as we discussed my new medication. He’d just finished explaining the success he’s found with other patients using this very new and relatively... Continue Reading →

Capturing Cloud 9

Ridiculous, I know, but since forever, I've always wanted to jump out of a plane with a jar in one hand and the lid in the other over a pile of fluffy, brilliantly white clouds. And ultimately I'd turn the jar face down and catch a piece of that cotton candy sky, seal it tight and then I would never have to be fully back "down to earth" with it by my side...

A Letter to My Husband: When We Aren’t Sick Anymore

Yep, I know. I know he is. He always is. My sanity, my “life coach” on days I can’t see straight for being so depressed, my normalcy, my savior along this journey... And so this post is a letter to him. To all the unsung heroes and caretakers that bear the brunt of a disorder/disease they “acquired” by association and through……….… love.

Four Days…

And our phone conversation perfectly encapsulated the isolation of my pregnancy, the sheer loneliness of these past 6 months. Portions of the last 4 years really. Geez that “looks” long when you see it on paper but living it is even longer, and being forgotten while living is even more painful...

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